Caregiver Burnout Essay

Opportunities and Stresses of Caregiving
Care giving can be extremely stressful mentally, physically, and emotionally. There are many responsibilities being a caregiver. There are responsibilities and needs that need to be met for the person you are caring for as well as your own responsibilities and needs. This can be very draining and can take a toll on your physical and emotional wellbeing. Caregiving is a broad term describing a wide range of support that can be as simple as helping with activities of daily living for people that are still independent and care for themselves, to helping someone bath, feed, dress and walk that are almost fully dependent and may even end up bedridden.
According to womensghealth.gov caregiver stress is defined as the emotional and physical strain of caregiving.   These strains can affect you and your health in many ways, such as decreased energy levels, depression, or anxiety, stain on other relationships in the house, increased risk of drug or alcohol abuse, injury, and increased illnesses. It is important for caregivers to incorporate strategies into their daily routine that help relieve stress. Although caregiving is a challenge for some families and an issue in the larger society, it is not universal or a lengthy span for every family (Morgan & Kunkel, 2011).
AARP suggests speaking with the doctor of the person you are caring for to learn as much about the illness and how to care for that person. Don’t be afraid to ask or accept help. Confide in friends and other family members, keeping open communication about how you feel may help decrease feelings of anger, resentment and helplessness. Join a support group with a weekly or monthly meeting or online via message boards, chat rooms or blogs. This will provide time for you and give opportunities to speak with other people going through the same thing. Continue to incorporate the activities that give you pleasure that you normally would do. Eat healthy meals and take...

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1. NAC [Accessed 8/20/10];Caregiving in the U.S. 2009 http://www.caregiving.org/data/Caregiving_in_the_US_2009_full_report.pdf.

2. Vitaliano PP, Zhang JP, Scanlan JM. Is caregiving hazardous to one's physical health? A meta-analysis. Psychol. Bull. 2003 Nov;129(6):946–972.[PubMed]

3. Gouin JP, Hantsoo L, Kiecolt-Glaser JK. Immune dysregulation and chronic stress among older adults: a review. Neuroimmunomodulation. 2008;15(4–6):251–259.[PMC free article][PubMed]

4. Lee S, Colditz GA, Berkman LF, Kawachi I. Caregiving and risk of coronary heart disease in U.S. women: A prospective study. Am. J. Prev. Med. 2003;24(2):113–119.[PubMed]

5. Schulz R, Beach SR. Caregiving as a risk factor for mortality - The caregiver health effects study. Jama-J Am Med Assoc. 1999 Dec 15;282(23):2215–2219.[PubMed]

6. Kim Y, Schulz R. Family caregivers' strains: comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving. J. Aging Health. 2008 Aug;20(5):483–503.[PubMed]

7. Kurtz ME, Kurtz JC, Given CW, Given BA. Depression and physical health among family caregivers of geriatric patients with cancer--a longitudinal view. Med Sci Monit. 2004 Aug;10(8):CR447–456.[PubMed]

8. Grant M, Cooke L, Bhatia S, Forman SJ. Discharge and unscheduled readmissions of adult patients undergoing hematopoietic stem cell transplantation: Implications for developing nursing interventions. Oncol. Nurs. Forum. 2005;32(1):E1–E8.[PubMed]

9. Foster LW, McLellan LJ, Rybicki LA, Sassano DA, Hsu A, Bolwell BJ. Survival of patients who have undergone allogeneic bone marrow transplantation: The relative importance of in-hospital lay care-partner support. J Psychosoc Oncol. 2004;22(2):1–20.

10. Frey P, Stinson T, Siston A, et al. Lack of caregivers limits use of outpatient hematopoietic stem cell transplant program. Bone Marrow Transplant. 2002;30(11):741–748.[PubMed]

11. CIBMTR Annual Report. [web page] [Accessed 11/22/11];Reference Center, Slides Reports, Summary Slides. 2009 Available at: http://www.cibmtr.org/ReferenceCenter/SlidesReports/SummarySlides/Pages/Index.aspx.

12. Beattie S, Lebel S. The experience of caregivers of hematological cancer patients undergoing a hematopoietic stem cell transplant: a comprehensive literature review. Psycho-Oncol. 2011;20(11):1137–1150.[PubMed]

13. Stenberg U, Ruland CM, Miaskowski C. Review of the literature on the effects of caring for a patient with cancer. Psycho-Oncol. 2010;19(10):1013–1025.[PubMed]

14. Kim Y, Schulz R, Carver CS. Benefit-finding in the cancer caregiving experience. Psychosom. Med. 2007 Apr;69(3):283–291.[PubMed]

15. Hodges LJ, Humphris GM, Macfarlane G. A meta-analytic investigation of the relationship between the psychological distress of cancer patients and their carers. Soc. Sci. Med. 2005;60(1):1–12.[PubMed]

16. Swore Fletcher B, Dodd M. Symptom experience of family caregivers of patients with cancer. Oncol. Nurs. Forum. 2008;35(2):E23–E44.[PubMed]

17. Williams LA. Whatever it takes: Informal caregiving dynamics in blood and marrow transplantation. Oncol. Nurs. Forum. 2007;34(2):379–387.[PubMed]

18. Palos GR, Mendoza TR, Liao KP, et al. Caregiver symptom burden: the risk of caring for an underserved patient with advanced cancer. Cancer. 2011 Mar 1;117(5):1070–1079.[PMC free article][PubMed]

19. Bevans MF, Mitchell SA, Marden S. The symptom experience in the first 100 days following allogeneic hematopoietic stem cell transplantation (HSCT) Support. Care Cancer. 2008;16(11):1243–1254.[PMC free article][PubMed]

20. Bishop MM, Beaumont JL, Hahn EA, et al. Late effects of cancer and hematopoietic stem-cell transplantation on spouses or partners compared with survivors and survivor-matched controls. J. Clin. Oncol. 2007;25(11):1403–1411.[PubMed]

21. Sternberg EM. Neural regulation of innate immunity: a coordinated nonspecific host response to pathogens. Nat. Rev. Immunol. 2006;6(4):318–328.[PMC free article][PubMed]

22. Heim C, Ehlert U, Hellhammer DH. The potential role of hypocortisolism in the pathophysiology of stress-related bodily disorders. Psychoneuroendocrinology. 2000;25(1):1–35.[PubMed]

23. Lucini D, Cannone V, Malacarne M, et al. Evidence of autonomic dysregulation in otherwise healthy cancer caregivers: a possible link with health hazard. Eur. J. Cancer. 2008 Nov;44(16):2437–2443.[PubMed]

24. Rohleder N, Marin TJ, Ma R, Miller GE. Biologic Cost of Caring for a Cancer Patient: Dysregulation of Pro- and Anti-Inflammatory Signaling Pathways. J. Clin. Oncol. 2009 Jun 20;27(18):2909–2915.[PubMed]

25. von Kanel R, Mausbach BT, Patterson TL, et al. Increased Framingham coronary heart disease risk score in dementia caregivers relative to non-caregiving controls. Gerontology. 2008;54(3):131–137.[PubMed]

26. Nader N, Chrousos GP, Kino T. Interactions of the circadian CLOCK system and the HPA axis. Trends Endocrin Met. 2010 May;21(5):277–286.[PMC free article][PubMed]

27. Juster RP, McEwen BS, Lupien SJ. Allostatic load biomarkers of chronic stress and impact on health and cognition. Neurosci. Biobehav. Rev. 2010 Sep;35(1):2–16.[PubMed]

28. Roepke SK, Mausbach BT, Patterson TL, et al. Effects of Alzheimer caregiving on allostatic load. J Health Psychol. 2011 Jan;16(1):58–69.[PMC free article][PubMed]

29. Cohen S, Tyrrell DA, Smith AP. Psychological stress and susceptibility to the common cold. N. Engl. J. Med. 1991;325(9):606–612.[PubMed]

30. Glaser R, Kiecolt-Glaser JK. Stress-induced immune dysfunction: implications for health. Nat. Rev. Immunol. 2005;5(3):243–251.[PubMed]

31. Armaiz-Pena GN, Lutgendorf SK, Cole SW, Sood AK. Neuroendocrine modulation of cancer progression. Brain. Behav. Immun. 2009;23(1):10–15.[PMC free article][PubMed]

32. Epel ES, Blackburn EH, Lin J, et al. Accelerated telomere shortening in response to life stress. Proc. Natl. Acad. Sci. U. S. A. 2004;101(49):17312–17315.[PMC free article][PubMed]

33. Nijm J, Jonasson L. Inflammation and cortisol response in coronary artery disease. Ann. Med. 2009;41(3):224–233.[PubMed]

34. Bjorntorp P, Rosmond R. Neuroendocrine abnormalities in visceral obesity. Int. J. Obes. 2000 Jun;24:S80–S85.[PubMed]

35. Pace TWW, Hu F, Miller AH. Cytokine-effects on glucocorticoid receptor function: Relevance to glucocorticoid resistance and the pathophysiology and treatment of major depression. Brain Behavior and Immunity. 2007 Jan;21(1):9–19.[PMC free article][PubMed]

36. NCCN [Accessed 11/21/11];Distress Management - NCCN Guidelines for Supportive Care. 2011 http://www.nccn.org/professionals/physician_gls/f_guidelines.asp.

37. Bevans M, Wehrlen L, Prachenko O, Soeken K, Zabora J, Wallen GR. Distress screening in allogeneic hematopoietic stem cell (HSCT) caregivers and patients. Psycho-Oncol. 2011[PMC free article][PubMed]

38. AMA [Accessed 11/22/11];American Medical Association-Caregiver Self-Assessment. 2011 http://www.amaassn.org/ama/pub/physician-resources/public-health/promoting-healthy-lifestyles/geriatric-health/caregiver-health/caregiver-self-assessment.page.

39. Epstein-Lubow G, Gaudiano BA, Hinckley M, Salloway S, Miller IW. Evidence for the validity of the American Medical Association's caregiver self-assessment questionnaire as a screening measure for depression. J. Am. Geriatr. Soc. 2010 Feb;58(2):387–388.[PubMed]

40. AMA [Accessed 11/14/11];Healthier Life Steps Questionnaire - American Medical Association. 2008 http://www.ama-assn.org/resources/doc/public-health/hl_questionnaire.pdf.

41. PROMIS-NIH [Accessed 05/20/11];Patient Reported Outcomes Measurement Information System (PROMIS) 2011 http://www.nihpromis.org/.

42. Lederbogen F, Kuhner C, Kirschbaum C, et al. Salivary cortisol in a middle-aged community sample: results from 990 men and women of the KORA-F3 Augsburg study. Eur. J. Endocrinol. 2010 Sep;163(3):443–451.[PubMed]

43. Thayer JF, Sternberg EM. Neural aspects of immunomodulation: focus on the vagus nerve. Brain. Behav. Immun. 2010 Nov;24(8):1223–1228.[PMC free article][PubMed]

44. Strahler J, Mueller A, Rosenloecher F, Kirschbaum C, Rohleder N. Salivary alpha-amylase stress reactivity across different age groups. Psychophysiology. 2010 May;47(3):587–595.[PubMed]

45. Steudte S, Stalder T, Dettenborn L, et al. Decreased hair cortisol concentrations in generalised anxiety disorder. Psychiatry Res. 2011 Apr 30;186(2–3):310–314.[PubMed]

46. Cizza G, Marques AH, Eskandari F, et al. Elevated neuroimmune biomarkers in sweat patches and plasma of premenopausal women with major depressive disorder in remission: the POWER study. Biol. Psychiatry. 2008;64(10):907–911.[PMC free article][PubMed]

47. Emanuel EJ, Fairclough DL, Slutsman J, Emanuel LL. Understanding economic and other burdens of terminal illness: the experience of patients and their caregivers. Ann. Intern. Med. 2000 Mar 21;132(6):451–459.[PubMed]

48. Rabow MW, Hauser JM, Adams J. Supporting family caregivers at the end of life: “they don't know what they don't know” JAMA. 2004 Jan 28;291(4):483–491.[PubMed]

49. Northouse LL, Katapodi MC, Song L, Zhang L, Mood DW. Interventions with family caregivers of cancer patients: meta-analysis of randomized trials. CA. Cancer J. Clin. 2010 Sep-Oct;60(5):317–339.[PMC free article][PubMed]

50. Jacobs TL, Epel ES, Lin J, et al. Intensive meditation training, immune cell telomerase activity, and psychological mediators. Psychoneuroendocrinology. 2011 Jun;36(5):664–681.[PubMed]

51. Sofi F, Abbate R, Gensini GF, Casini A. Accruing evidence on benefits of adherence to the Mediterranean diet on health: an updated systematic review and meta-analysis. Am. J. Clin. Nutr. 2010 Nov;92(5):1189–1196.[PubMed]

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